One of the major goals of Honey2Healing is to provide information and support for people suffering from chronic illnesses, particularly Lyme disease. Here are some sources of information to get you started.
Lyme disease is the most commonly reported vector-borne disease with a CDC estimate of 300,000 cases annually in the USA alone. Johns Hopkins researchers estimate that it costs $1.3 billion annually to treat Lyme disease. This is a global, yet largely silent epidemic. Until now.
Treatment centers and hospitals
Columbia University Lyme and Tick-Bourne Diseases Research Center (New York, NY)
Dean Center for Tick Borne Illness, Spaulding Rehabilitation Network, Harvard Medical School Teaching Hospital (Boston, MA)
Johns Hopkins Lyme Disease Research Center (Baltimore, MD)
Open Medicine Institute Clinic (Palo Alto, CA)
Stanford University Lyme Disease Working Group (Stanford, CA)
Bay Area Lyme Foundation
The Bay Area Lyme Foundation (BALF) mission is to put a stop to Lyme disease. They fund scientific research with a focus on prevention and the development of better diagnostics and treatments. BALF is committed to making Lyme disease easy to diagnose and simple to cure.
Global Lyme Alliance
The Global Lyme Alliance (GLA) mission to create a stronger voice for the Lyme community—especially for young people who suffer from these illnesses. In 2015, GLA merged with two organizations—the Tick-Borne Disease Alliance (TBDA, http://tbdalliance.org/) and Lyme Research Alliance (LRA, http://www.lymeresearchalliance.org/)—to provide an even greater capacity to fund the critical research required to eradicate Lyme and support the Lyme community.
Founded in 1989, LymeDisease.org is a national grass-roots organization with state-based Internet groups in every state of the nation. The Lymedisease.org website draws over 1.2 million unique visitors a year. Lymedisease.org advocates nationally for quality accessible healthcare for patients with Lyme and other tick- borne diseases. They are committed to shaping health policy through advocacy, legal and ethical analysis, education, physician training and medical research.
In November 2015, Lymedisease.org and IdeaScale launched the MyLymeData platform to empower and connect patients with innovative crowdsourcing of medical data for patient-powered research. Each and every Lyme patient, no matter where you live in the world, can add your Lyme data to MyLymeData to help find a cure for Lyme disease.
Lyme Light Foundation
The mission of the Lyme Light Foundation is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease. In addition to providing financial support, Lyme Light offers stories of hope.
Educational tools & resources for non-scientists
Under Our Skin (documentary films, 2009 and 2014)
The award-winning documentary “Under Our Skin” exposes the hidden story of Lyme disease, one of the most serious and controversial epidemics of our time. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are all in their head. Following the stories of patients and physicians fighting for their lives and livelihoods, the film brings into focus a haunting picture of the health care system and a medical establishment all too willing to put profits ahead of patients.
A sequel released in 2014, “Under Our Skin 2: Emergence,” presents new findings in the field of Lyme treatment, and offers hopeful stories about recovery from the patients introduced in the first film.
In 2015, film Director, Andy Abrahams Wilson, produced a 45-minute edition of the original Under Our Skin film that screened as part of the “Innovations-X: Lyme Science & Solutions” symposium in Washington DC, November 2015. This symposium was part of a larger event, “Innovations-X: Rising Above the Politics for Progress in Science” sponsored by the AAAS Science and Technology Policy Fellowship program, which is part of the American Association for the Advancement of Science (AAAS).
Cure Unknown: Inside the Lyme Epidemic (book, 2008)
A groundbreaking and controversial narrative investigation into the science, history, medical politics, and patient experience of Lyme disease told by a science journalist, Pamela Weintraub, whose entire family contracted the disease.